Do You Have What it Takes to Become an Autism Advocate Consultant

    There's a great need in our community for Autism Advocates. Parents of newly diagnosed children often do not know where to turn, or how to get the school to work for them. For this reason and more, we need more advocates.

Do You Have What it Takes to Become an Autism Advocate Consultant?

    Being a special needs mom myself, I know how hard it is to make ends meet. I can't work outside of my home because my son is homeschooled, and has major anxiety when I'm too far away from him. For this reason, I started working freelance from home. I only do it part time because of all of my other responsibilities, but if you have the time, you could do this too.

    What our community really needs are people that are educated in state and government laws, in concern to education and special needs. Many parents need someone that knows all of the ins and outs, to direct them in how to approach their child's schools to get the help they need. I can't tell you how many times a week I am messaged by a parent that needs advice on where to turn!

    An Autism Advocate Consultant would be that person. 

How to Start a Consulting Business

    Find your niche. In this case, we're talking about Autism Advocate Consultants. Are you an autism parent? Being one yourself would be super beneficial in becoming an Autism Advocate Consultant. (Honestly, I would hire a parent that lived the spectrum life before I would hire someone that didn't.) I'm not saying you HAVE to be an autism parent, but being one would mean a lot to another ASD parent. Next, you need to dive into Wrights Law. Learn all of the ins and outs as it pertains to special children like ours. Then you would want to decide if you are going to be a state specific consultant, or work with parents from other states.

    If you're going to be state specific, then you would focus on the state in which you reside. You would learn every law as it pertains to your home state, and special needs. If you're going to work with parents in other states, then start learning all of their laws too! 

Immerse Yourself in FAPE, IEP's, 504's and more

    What is FAPE? Well, if you're going to be an autism advocate consultant, you have to know what it is. FAPE is FREE APPROPRIATE PUBLIC EDUCATION. This is a governmental law that dictates that all children, regardless of ability MUST be provided with a free public education in a manner that suits their needs.  

    You'll need to learn the difference between an IEP (individualized education plan) and a 504 plan. Since we're talking about acronyms, it would be a good time to familiarize yourself with SLP, PT, OT, ABA, TSS, BSC, and more. All of these are services provided to children with disabilities. Either by schools, or private insurance. 

Will You Be an in Person Consultant, or Cyber

    You will also want to decide if you will be an in person consultant or a cyber one. Will you have an office where parents can meet you? Will you travel to families? Or will you consult via the internet? The latter is probably the most feesible, especially if you're going to consult on all fifty states. 

    Many parents need an autism advocate to attend IEP/504 meetings. With today's technology, they can take you with them via any tablet, laptop or phone. Skype into their meeting, and help them get their children's needs met. At the end of the day, you'll not only be helping to support your family, but you'll be helping a family in need, which can be so rewarding! 

    

Back to School, Special Needs Style

    Back to school means many different things for many different families. The lists, the shopping, and so on. Many moms are excited to have a break. Many will miss their kids. Many are worried.

    Special Needs parents are no better than NT ones. Our lives are just different. Back to school for us, means more worries. How will our child handle the change? How will they do in school? How will they handle the bus ride? Will they ride a bus with NT kids? If so, how will they handle that? Will their IEP be followed? How often will we get a call from said school?

    I'm lucky in this department. Our decision to home school was one of the best I ever made. (It was a no brainer after our local school violated our son's civil rights) This isn't to say I don't have worries.

    We still need to get a routine down. This sometimes takes a couple weeks. Liam, like many autistics, loves routines, but only if they are HIS routines. For me, "mommy mode" needs to be turned off and "teacher mode" needs turned on, at least for part of our day. So it takes us a bit to get into our groove!


    Then his therapies start back in for the year. Since he has in home OT and PT, we just work around those times. Speech is at our local library, so that's the one we schedule for "after school." Oh, and then he has a mobile therapist, so we must work around that too.

    He also has an IEP. Yes, he is "home schooled" with a PA cyber school, so he does get an IEP. They also provide all the above therapies except the MT. (His insurance provides that.) I have IEP meetings just like you do. Except I don't need to get dressed and leave my house! (home school perk number one!)

     School shopping? Pffftttt! I don't have to do that either. Liam, like many autistics doesn't care for clothes, so he does his lessons in his underpants. No need for a whole new wardrobe! School supplies? The cyber school mails them to us! Everything he and I both need for a successful year. (home school perk number two!)

    Bed time? No need to prep for that! We have Liam on an "asynchronous" course. That means we do his lessons, on his time. Sleep is for the weak in this home, and Liam is RARELY in bed before midnight. So if he sleeps in, cool! We start classes around 11 or noon the next day. This gives him time to do something he wants, and then we do lessons, and then he can play outside. (home school perk number three)

    This also means if he's having a rough day, we can skip lessons. So no calls from school about rough days! We can also double up on lessons on good days! Last year, Beans was done with school in APRIL! Yes! We have been on summer break since spring! (getting into our groove may take a bit this year!)

    School bus isn't a worry! (Thank God, because the 4 days he rode it in kindy he was bullied for his lunch snacks)  (home school perk number four!)

    Doing school from our living room is a blessing and a luxury! As you can see, personally, we have many perks, but I still have worries. Thankfully, they aren't as severe as the special needs parents that don't have the option to home school. I've had those worries before and it wasn't fun. So I feel for all of you. Keep that in mind as you are sending your NT kids back to school.

IEP Meetings

    IEP meetings. Almost every, special needs parents' apple of discord. Why is it that so many families have to fight to get what their child needs AND deserves? I mean, these people go to school for a career, in which they are to help mold and teach children. Why is it that they seem so adamant to make us fight to have their needs met?

    Those of you who have followed our journey since the beginning, know what we went through with our local brick and mortar school. You also know why I pulled my son, and home/cyber school him. (here's the skinny: By day 4 of kindy, Liam quit speaking, eating and only cried and rocked. His shirts were ruined from chewing. Bus came on morning 5 and all hell broke loose. We pulled him. After a week of silence, he opened up and said the teacher had placed him in the hall for most of each day. The lunchroom smells made him sick and the noise in the gym made him cry. NO ONE told me! We started meetings. They argued that he wasn't autistic ("a clinical dx is NOT the same as an educational dx.") I ended up getting the State involved. They then decided they should give up the fight. I then told them to shove it, and home schooled.)

    Fast forward to 3rd grade. Two cyber schools later. My son gets speech therapy, occupational therapy, AND physical therapy. The three T's that the local school fought so hard to not give him. He also gets in home behavior therapy. (Which has decreased in the last year.)

    What makes me so angry is that, as his mother, I could see where he was lacking. Yet these "professionals" kept arguing with me. It took YEARS to get someone to listen to me, to get the right evaluations by QUALIFIED professionals. (I say qualified because I even had an OT outside of the school district, tell me that he didn't need OT or PT. Yet, here we are. With new therapists, that CARE to do their job correctly.)

    I guess my point of this post is this: As a parent, YOU know your child. You know what they need. You know them better than anyone else. Don't ever let the school, or "professionals" dismiss your concerns as trivial. You keep fighting. You go over their heads. If you still don't get anywhere, you go over that person's head. You are your child's advocate. You put on those proverbial boxing gloves, and enter the famed fight club, and you don't give in. You get what your child needs and deserves.

    Then you have a libation, and pat yourself on the back. You are a special needs parent, and when needed, you are a force to be reckoned with.

Individualized Educational Plan Laughs and Tears

AKA, IEP laughs and tears....

Anyone here ever look at IEP drafts and laugh at the goals?

No? Just me????

Now before you rip my head off, keep reading.....

I don't laugh because I think my son can't pull this off. I laugh because half of these goals are on MY shoulders, and I think HOW THE HELL AM I GOING TO PULL THIS OFF?







I HAVE to get my son to do these things. I home/cyber school. So half the goals are geared towards his therapists. The other half are geared towards what I have to work on with him.

No more than TWO verbal prompts? Do they KNOW my child?

On task behavior for 30 minutes at a time???? 80% of the time???? With ADHD????

Also, I laugh over the ones about licking food, or even eating it. I laugh because I have been trying that for years. I have been puked on. I have had my dinner puked on. All over trying to get him to eat something new.

Food aversions aren't this easily over come! I pray the new OT has a tarp or a parka to keep the puke off her nice work clothes!

Next up we have the self care goals. These don't make me laugh. They kind of make me sad. Liam will be 9 in May. He has tied his shoes ONCE. It took a lot of tears to get there. Now he refuses because "it's too hard, and I just can't do it mama!" He can't button. Snapping is a struggle. Zippers? He can't zip his coat either. If you start it, he can. But he can't put his coat on and zip and snap it. These goals I PRAY the OT can pull off. I PRAY he will do his best for her and learn these tasks. I know it will make him feel so much better about himself!

You can do it baby! Mama knows you can! <3

You know what Liam hates MORE than tying or zipping? WRITING! His cyber school sent me the "Hand Writing Without Tears" curriculum in kindy. That name is SUPER deceiving. He had tears. I had tears. I think the dog lying next to his desk even had tears, hearing her boy so distraught.

They have instituted  Scribe for him. (we are still waiting on the program) But in the mean time, my baby needs to learn to write more legibly. The reversals and the mix of capitol and lowercase is quite bad. Thankfully the OT will be working with him on this. I don't know how much more my heart can take. Watching your baby struggle day in and day out is hard. Home schooling is DEFINITELY NOT for the faint of heart.

There were a lot of other things in his IEP that broke my heart. For his privacy, I am keeping that to ourselves. It's hard to see where your child falls short in writing. It's hard to swallow.

So I guess, part of the reason I choose to laugh at some of these goals, is because other things in the IEP are hard for me to handle.

Then I step back. I look up from my writing, and I see a happy, handsome, and fairly healthy little boy. Busy lining up his comic books and humming to himself. In that moment, I know that no matter where he falls short, no matter where he lacks, he is happy, and he is mine, and I love him more than life itself!