Showing posts with label Empathy. Show all posts
Showing posts with label Empathy. Show all posts

Tuesday, November 11, 2014

Tears in Heaven

    A year ago today, I got a call that no one wants to get. My beloved papa Ross suffered a massive stroke and was rushed to the nearest hospital. (which happens to be in Maryland as they live on an island in Va) The prognosis wasn't good. There weren't a lot of details. I became numb.

    While my mother gathered her wits, and some necessities, my father and Pita took her to the airport. She got an emergency flight out to get there quicker. They rushed my papa into the OR, but even that was in vain.  By the time all of this happened, it was the next day. Call it fate, but my mom happened to be able to meet my aunt on the connecting flight in Philly, so they could go the rest of the way together. That evening, after finally arriving, they joined my gram and my papa.

    I rushed over to my father's because my dad is lost without my mom. I had started cooking him meals as soon as I knew she was leaving. She called us with an update, and said it wouldn't be long. I couldn't even tell him goodbye over the phone because when he was spoke to, his blood pressure would sky rocket and his oxygen would bottom out. (his living will stated he couldn't be sustained on life support, so Gram only kept him on so he could say good bye to his girls.)

                                                        I was devastated.

    Knowing there was nothing else I could do, we went home. Just before we got out of cell service my phone rang. It was my dad. He told me, the three said their good byes and my papa went to be with our Lord. I was thankful in that moment that he was no longer suffering, but I was angry. It was so sudden. He was seemingly healthy. He had been fishing with his buddy all day, and came home and that was it.

    The darkness in the car was a God send, for I hate people to see me crying. I turned the radio up a bit and wept. I had only 10 minutes before we would be home, and Liam can't stand to see me cry. (Supposedly autistics lack empathy, but not my kid.)

    I explained to Liam that great papa was gone. He knew the outlook was grim. We prepared him from the get go. His therapists were even ready with a grieving plan in the event that he needed it. He didn't it. Oddly, my son is sometimes so much stronger than a child should be.

    Out of nowhere, tears would start to slide down my cheeks, and I'd try to wipe them away. Liam would notice. He would stop what he was doing to comfort me. He's always been a little man in that respect.

    At this point my father was losing it. He's never been away from my mom, only ONE time in their almost 30 years of marriage. He wanted to be with his wife. Comforting and consoling her. We decided that we would drive him down in his car. We would stay just two days and come home with his car, and he would come home later with Papa's truck.

    The trip was long. Much longer for my father. We finally arrived in Virginia, and gram, mom and Aunt J seemed to be in a great spirits despite. It was a hard couple days. I was afraid to say the wrong thing and make more memories for my gram or my mom. I stayed pretty quiet, just taking it all in.

    For Liam it was exciting. We don't go on trips often, let alone so far. We were staying in a hotel. We took him to see the beach (even though it was freezing.) I said my goodbye to papa on that beach. That was where his heart belonged. He and gram vacationed on this island, LONG before they lived here. Finally retiring to their dream town. My papa spent the majority of his days fishing the surf. Gram in her chair, reading in the sun.

(Papa and I circa 1989)

    We went back to the island this summer. This time with my sister and my brother. It was a melancholy experience. Seeing his office, where his truck sat, and where his boat rested, was hard. Pita calling gram on speaker phone to go visit her, and the machine picking up, with HIS voice, that was soul crushing. For a second my heart stopped. It was like I forgot he wasn't with us. I lost it.

  The beach was different. It was like he was there. Watching over us all as we frolicked in the surf. Smiling down as we laughed and enjoyed each other's company. (the first time we took Liam to the beach there, he was not quite 2. Poor papa was a nervous wreck watching him run to the waves with wild abandon. And the quietest, kindest man that I have ever known, actually cussed at some fishermen for fishing to close to his grand kids and great grand son. I almost died!)

    The one thing Liam wanted to do more than anything that vacation was to fish. To be like his great papa. And fish we did. All but one day that child had his pole in the water. Of course, great gram brought him his very own deep sea fishing pole. I know my papa was proud!



    Liam is now in love with that little island. And so am I. Grammy is still there, with my aunts. But so is grandpa. His heart, and his memory resides on that little island as well. As I sit typing this, tears pulsing in my eyelids, I long for the day when I can visit him again. When I can sit with grammy in the sun, and listen as she tells us stories of their time together.



In loving memory of Papa Ross.

Forever in my heart



Monday, October 6, 2014

The Look

     Have you ever been out in public, talking to someone about your child's autism, and they give you the look. Or you run into a high school chum and when they ask you what you've been up to, and you tell them, "the autism life," and they give you that look?

     You know what look I mean. The "wow, I'm so sorry," look. Now, don't get me wrong, I'm not trying to condemn someone for having a heart. But that look! It makes my stomach flip, my heart skip a beat and for a split second, makes me angry.

             Hey, I'm only human.
 They are my feels and they are real.

I'm not trying to knock someone for being empathetic. I mean, yes, I would much rather you have empathy for our family, than for you be afraid of us, or hate us. But, it still hurts. It's still a blow.

    So I was thinking. Do me a favor. Do other autism or special needs parents a favor. Look at us with admiration. Look at my child and think, "Damn! That kid is kicking autism's ass today!" Or even, "Wow! That kid is defying Bipolar Disorder! Look at him! He's so happy. Working so hard at making the most of life!" Or hell, even tell him that.

 


 Admiration ROCKS!!!! It might just give us or our kiddos the extra nudge we might need that day. Caffeine, sugar, adrenaline, that only works so long. Sometimes we need moral support. Sadly, not every special needs parent gets that support. BE THAT SUPPORT!

 




 I guess what I'm saying is empathy is good, but keep it in check. Don't feel sorry for us. Some days are hard. Shit, some days I just want to crawl back into bed and cry. Some days I don't even want to get out of bed. Then I see that face. That little face that depends on me. That little face that looks to me, to help him face life. That little face that stole my heart, and taught me what true, unconditional love, really was. In the end, we're really not that much different from you.  Our struggles are different, but our needs are much the same.





Thursday, January 5, 2012

My Aspie can't catch a ball or a sneeze....

Ok, so the fact that my lil man can't catch a ball (we're working on that :)) really has no relevance here, just think its a cute title. However, hubby and I did notice he doesn't catch a yawn like we do. Google to the rescue! Upon further research, apparently ASD children don't "catch" yawns as often as NT children do. According to the articles I have read, (and I will link them at the end of my blog) researchers theorize this is because ASD kiddos aren't picking up on the social cue of contagious yawning. Apparently so, because hubby and I conducted our own mini experiment last night. 15 times I got my aspie's attention and yawned, and not ONCE did he "catch" it. Hubby tried as well, only about 5 times, but yet again, aspie did not respond, just looked at us like we were freaks! Upon further research it seems scientists believe this may be in part because ASD kids focus on different parts of others' faces. NT people normally look into someones eyes, where as autistic kids focus on one's mouth. (My aspie definately does this) Scientists say this further supports their belief that yawning is based on empathy, and the mimicry that comes with it. In NT people one is more likely to "catch" the yawn of a friend or family member almost EVERY time as opposed to a stranger. They state this is because our ASD kids lack empathy, therefore making it harder for them to read social cues, so they lack the ability to "catch" the yawn. I believe my son does shows signs of empathy, but not always. I know he has a hard time with social cues, but again, not always. He can usually read mine or hubby's cues, but not others. So I wonder why he can"t "catch" our yawns? I guess I will never know, and leave it to the scientists that are still trying to fit the pieces of the puzzle together. However, if you're sitting home on rainy, drab day, looking for something to do, try to get your aspie to "catch" a yawn. The results may surprise you!


As promised, the links to the articles I read.....
http://www.sciencedaily.com/releases/2010/09/100915080427.htm


http://www.everydayhealth.com/healthy-living/why-do-we-yawn-and-why-is-yawning-contagious.aspx


http://www.nature.com/news/2007/070813/full/news070813-4.html

Thursday, December 29, 2011

Empathy and my Aspie

I have read a lot of articles and opinions regarding people with AS lately. I think the one thing I am struggling to believe the most is the lack of empathy that is associated with someone with Aspergers. The definition of Empathy is, "the action of understanding, being aware of, being sensitive to, and vicariously experiencing the feelings, thoughts, and experience of another without having these things fully communicated to the individual." I struggle with this "assumption" because though my aspie doesn't always pick up on, or understand why someone is angry or sad, he does however express extreme emotion over a sad movie or a song. So much so that if he feels a movie is becoming too sad (either in dialogue or in the background music they use to create the mood) he will insist, (and sometimes angrily I might add) that his father and I turn the movie off immediately. Same goes for music. If a slower song comes on, it seems to spark sadness in him, and he will demand the song be changed. He has told his father numerous times, "I don't like your country music crap, because it is too sad for me." I also see empathy in him at times in public. If LJ happens to see an elderly person having a hard time or struggling to do something he will say, "mommy, look at so and so, they are making me sad." So, I am left wondering, how can this child, who I am told can not express sympathy or empathy, who can't dinstinguish body language or facial expressions, who can't understand why one would be mad at him for dominating play, or being bossy. How then, can he empathize with perfect strangers, or be so affected by a movie or music? How can they generalize something so big and spread out as AS, and how can they say our children feel nothing?