Autistic People Should be.......

  So I first took notice to this awful search when Kerry Magro posted about it on facebook over the weekend. He stated that when you searched "Autistics should" in facebook, the first search that came up was "DIE"!!!! It angered me to no extent, but I really didn't have the heart or energy to try looking into myself. I was heading into a fibro flare up and anyone with fibro knows how horrible that is. I am not looking for a pity party, so I won't bore you the details. Just know I was tired, in pain, and miserable. :)

  Yesterday morning when I awoke and head to my my computer, foggy eyed and coffee in hand I saw a post by fellow (but much better) Autism blogger and daddy Jim W. His post for the morning was exactly about what Kerry was talking about. The abomination that shows up when you search Google for "Autistics Should be..." Jim even had pics of this horrible search. For his blog and a looky loo at the pic, click here.

  Needless to say that put a huge damper in an already sucky Monday morning. I had to search this for myself. Not that I didn't believe the two men I look up too (literally bc I am really short ;) ) but because I had to see the atrocity for myself. Seeing is believing. So I did..... (Blogger is still not letting me add pics to my blog, annoying as hell!!!!) So if you want to see for yourself, click here, or try searching "Autistics Should be" on Google.

  Okay, I really am trying to get to a point here!!!! This needs to be changed. If you were the parent of a newly diagnosed child, and you went to google for info, and you searched that, and saw what it says, what would you be thinking? I think I would be scared, sad, angry, and probably worried. So this must changed. We must work together and write about what Autistic People Should be, so when it is searched, the positive shows up.

  Bloggers already took to this. The author of the blog Yes, That Too, rallied other autism bloggers to join her and do just that. Now, I am always a day late and a dollar short, so I am just now jumping on this awesome bandwagon. If you would like to check out what the other bloggers wrote, click here.

  Now onto my part. I want someone who searches that to see things like, Autistic People Should Be: considered experts on Autism. They should be respected. They should be heard. They should be encouraged to be themselves. They should be accepted for who they are. They should be loved. They should be praised. I am sure there are many more things I could think of, but of course Liam is now up, and his motor mouth is non stop, and we need to get on to his morning routine.....

  Please, if this bothers you as much as it did me, and the many others, consider speaking out. Consider blogging with the title Autistic People Should Be, so we can change that search.....
                                                                       <3<3<3<3

Freebie Friday Review

 So if you follow my ALFL page then you know that last week I started Freebie Friday. Well of course, who doesn't like freebies! As Hubs says, "if it's free it's for me!" Well as I am learning that is NOT always the case. So I decided that along with linking freebies to you all, I would download the ones I could, then Liam and I would try them out to give you a review. Pretty cool right?!?!?!?

  Okay so here goes:

First up: Hungry Hungry Hippos (I mean who didn't love this game as a kid???? As an adult, it's too damn loud!!!) So I thought, ooohhh app will be quieter. (this app is for iPhone and iPad) I downloaded it, and Liam and I both tried it. The results:

Liam gave it ONE thumb up.....(I have a pic, but blogger is being a jerk!) So anyway, he only gave it ONE because, "it's good for little kids, but not big kids like me!" So there you have it.

Momma gave it ONE thumb as well. It was kind of hard to manipulate, but the graphics were cute!

To see for yourself, you can get it here: Hungry Hungry Hippo


Next on the list is Lego Creationary. This app is also for iPhone and iPad. I downloaded it, and we gave it a try. The results......

Liam gave it ONE thumb up....mainly because he was in too much of a hurry to actually try it out. I will try to get him to check it out again later.

Momma gave it TWO thumbs up! I liked it. I thought it was easy to play, and a good brain game. The gist, you roll a dice, it tells you house, tool, etc. Then it gives you four pics and it builds something. Your job is to guess what it's building based on the four pics before it's done. Pretty cool I think!

To check this out for yourself, you can get it here: Lego Creationary

The other freebie I shared, I can't rate because Liam doesn't have a leap pad. I hope it's good, and your kiddos enjoy it <3

Max Gamer~Aspie Superhero~A Review

  Yesterday Liam was stoked to find a copy of the Max Gamer comic book in the mail. He was even more excited when he opened it and saw it was signed, "Liam, You are Awesome! Dr. G" It made him feel so special, and his smile was ear to ear!

See, I told ya so :D

I originally learned about the comic book from a post in my news feed. I wish I could remember where, but my fibro fog is making it impossible to remember much of anything these days. I searched for the web site and emailed Dr. G. I told him how AUSOME this is for our kiddos, and what a great idea! I got an email asking for my address, and Dr. G came through and sent Liam a copy. What a kind man!!! To learn more about Dr. Frank Gaskill, you can visit his website here: Southeast Psych

Photo courtesy of the Max Gamer blog.

When I went to the website, one of the first things I saw was a statement from Temple Grandin.

"I read your Max Gamer Super Hero comic book

 and really Liked it.  I think it will help the smart Aspie kids to feel proud of themselves.

This comic would have helped me when I was a teenager who was being teased.."

-Temple Grandin -

Why was Max Gamer created?  "Max Gamer is intended for all children and was designed by “Aspies” for “Aspies.”  Asperger’s is not considered a syndrome by the the Max Gamer Authors but is considered a gift and an amazing skill." So Max Gamer was created by Dr. Gaskill and Ryan Kelly, for AUSOME kiddos like ours!!!!

To read more about the why's and how's or to order a copy please visit the MAX GAMER website.  

So, what did we think????? Well....

Liam couldn't wait to dig in and read it!!!

So before we settled in to watch our Christmas movie, we settled in to read Max Gamer. At first, Liam was all over the living room. He was listening, but as usual, unable to sit still. However, by the second page, he was at my side, listening, looking and smiling. You see, the book never comes out and says Max has Aspergers, but in the descriptions of him, there's no doubt. Liam looked at me and said, "Momma, was this written for me?" I told him no, but it sure does seem that way. Everything they describe about Max was like it was written for my lil man. (Kudos Dr. G and Mr. Kelly)

Moving through the story, (and I won't give it away here, because I am not one to spoil something for others) Liam became very intent on what I was reading. I could see how he was relating to Max's life. When it came to the part of Max's Dynagon cards, Liam was stoked!!!! (they were like a mix of Pokeman/Bakugan cards) That touch was especially a winner in Liam's eyes. He also liked how Max "kind of looked like Ben 10." Another of Liam's "heroes." 

Max Gamer, Aspie Superhero!

Photo courtesy of the Max Gamer Blog

In a nutshell, as a mother, I give the book 2 thumbs up. (The plot was great for kids. The pics were very eye catching too) Liam also gave the book "2 fums up!" His favorite part was "the Dynagon cards." And he "liked that it was about me." Meaning he related to the fact that it was written about a boy like him.

Max Gamer is the first comic book of it's kind to feature a super hero with Aspergers. I think it's a home run for Autistic kids, and I believe that every kiddo with Autism should have a copy. I also think it would be great if schools would read this to their students. It may just teach NT kiddos a little something about our ASD kiddos.

To get your copy please click here!

Thanks again Dr. G. Also a big thank to Ryan Kelly who helped in creating Max Gamer, and Kara Dahlheimer whom helped with the animations.

GREAT JOB by all!!!!!

Our Review of the Jiggler Gator Oral Motor Tool

         Today's post is a review of this:

The Jiggler Gator Oral Chewy (this sucker vibrates too!!)

 I can't remember where I first saw these AUSOME chewies....I know I was blog stalking, but I can't remember whose blog introduced them to me....I am sorry...If you know who you are, PLEASE tell me so I can give you props!!!
  When Liam saw these chewies he got really excited!!!! Momma went to Amazon to find them. There are many to chose from, and prices vary, so do you research! I aid $9.99 for Liam's and $4.99 shipping.
  These are made and distributed by Abilitations. However, they are pricey!!! They charge more than other stores that are selling the same product. As I said, I ordered Liam's through Amazon, but it came from Sensory Junction. You can CLICK HERE to go to their Amazon Store, or CLICK HERE to go to their website.
 So what did we think? Well for starters I was first concerned with the size. Liam is a gagger. EVERYTHING makes him gag. I was worried about the size of it and it just causing him to vomit when place in his mouth. He REALLY wanted it. I have his grant money set aside from Autism Hearts, so I figured, what the hell, let's get him one.
  When I opened it, I wasn't happy about the way it turned on. I installed the battery and when you turn it to turn it on, the bottom comes loose. Last thing I need is :Liam to be gnawing on a battery. Well, surprise, surprise, if I READ the directions, I would have avoided this. PLEASE FOLLOW THE DIRECTIONS!!! Loosen the screw, install battery, then tighten the screw. This will keep the bottom from coming off when turned on. Okay, now momma was happy.....BUT, was Liam???????
  YES! He loves it! He mainly chews on the arms, because as I thought, the head is too big for his sensitive gagger. But he likes it!!!! He loves how it vibrates, and I have literally seen him with it at least 10 times a day. This is good!!!! No more chewing on his toys. No more chewing on me!!!!!
  So all in all, it was a great buy. I'm happy with it, he is happy with it, and I totally recommend getting one for your little chewer :)

                       The proof is in the pics:

He liked it so much, he even slept with it!!! He chewed himself to sleep :D

Tony Hawk Hoodie is Autism Friendly

  Do you have a kiddo who likes to hide when overwhelmed? I know I do! He has a body sock that he gets into when at home and he has the urge to hide, but in public, what can he do? Well, what he DOES is crawl up the back of my shirt, flashing my goodies to all who are close, and embarrassing the crap outta me!!! I have been thinking for months of what I can do when in public from stopping this from happening. Another fave thing he does is hiding his face in his shirt, and then he mows over any unlucky people in his way because his vision is inhibited!
  A month or so ago, my nephew got the coolest new hoodie. It zips all the way up, hood and all. It has mesh  for the eyes and mouth so you can zip up, hide your face, yet still see and breathe! Made by Tony Hawk, I thought this is the coolest damn thing I have seen. Now I know it wasn't made with kids with autism in mind, but it sure seems that way!!
  When Mimi and Paw asked for Christmas ideas for Liam, this was at the top of my list. When he opened that box he shrieked with joy! He put it on as soon as he was done opening gifts, even wore it outside and of course got it dirty. No matter, I will scrub those stains out. I am just happy that we can now go into public without my worrying about his need to hide when he is nervous. Without worrying he will flash my goods to strangers. And without me worrying that he will mow over some poor defenseless senior citizen because he is overwhelmed and can't see.

This is his "WOW" face :)

Rockin' the Autism Friendly Hoodie :)

For more info on these kick butt hoodies, or to get one for your Autie kiddo (and I totally, 100% recommend them) you can get them at Kohl's, or click here!

Autism and Marriage

  So I have wanted to write this post for awhile now, but I have been thinking hard on what I was going to write. My original title was Autism Vs Marriage, but I didn't feel that was right. First of all, I don't feel my son's Autism is up against our marriage. Secondly, I didn't want to offend anyone because this can be a touchy subject.
  Those who follow my blog know I am an honest person. I tell it like it is, and I hide nothing. So, with that in mind, here goes......
  Our marriage is FAR from PERFECT. As a matter of fact, we tend to argue~ a lot. You see, hubs is the authoritarian, and I am well... I am the sucker. Thing is, I have read all the books, I follow all the blogs, and when Liam is behaving a certain way, and hubs gets on him, I am quick to defend. I don't like to do that. I don't. However, if a behavior is Autism related, I make no qualms about letting hubs know. This does cause issues in our marriage. He gets upset with me. He thinks I baby Liam. I get upset because I think he needs to educate himself more.....This is where Autism causes a rift in our marriage.....Also, let's face it, it's stressful. The meltdowns, the lack of sleep, the obsessions.....the list goes on.... Hubs and I haven't even slept in the same room, in I think 4 years!!! We didn't sleep in the same bed because of his back problems, and he would toss and turn a lot, but then I had to sleep in Liam's room, because it was the only way for any of us to get any sleep. So now, Liam and I have a bedroom with our own beds, and hubs has his own room. NOT your typical marriage, but hey, it works for us. My mom reads this blog, so I am not even going into the sex issue. I'm just not. (you're welcome momma :)) I will share this pic though because it's perfect for what I want to say......Just scroll past it momma ;)

ha, told ya this was perfect :)

For all of these reasons, Autism has put a strain on our marriage, BUT......it has also strengthened it.
  Autism has also made our marriage stronger. In the almost 8 years we have been married, we have been through a lot. A hurricane, hub's back problems, his 2 major surgeries, Liam and Autism, myself and Fibromyalgia....It hasn't been an easy life, but it's our life. Autism has taught us to stick together. To stand up for Liam and to educate others about Autism. It has helped us stand together to fight for what Liam needs and deserves. Autism has done all this for our marriage....So while I can say it has made it harder,  it has also made it stronger......I guess I am on the fence with this.....

This is kinda how I feel. Either hubs and I are at war with each other, or at war against the world and fighting for Liam's needs and advocating to spread awareness!

   So, I reached out to reader's on my ALFL page, and asked for their input on this subject.... Below I will add what was sent to me on this topic:

Anon:

"I am currently married, but he is not the father of my children. I am divorced from my sons' dad, and never married my daughter's father. My sons both have ASD. Their dad doesn't accept that they have it, so now he has supervised visitation. He fights me at every turn. My husband is trying his hardest to be the dad that they deserve. He still has problems with some of their "issues" but I am strong and I deal with it in my own."

Sarah H says:

-I am married - 10 years

-Hubs & I both are NT

-Oldest daughter (6 years old) is autistic, SPD, ADHD, etc

-Also military family <--- adds lots of strain on top of it all

-We argue a lot over discipline w. Lou. What should we expect from her? What is too much? Do we expect less during medication changes? What about when she's had bedtime meds? Does medication mean she can act horribly and get away with it? One day I will be losing my mind and hubs can be the calm one, while the next day we flip roles. He lets her get away with more, gives her more treats to calm screaming and tantrums, while I am more of the iron-fist more often. We've done marriage counseling to assist with parenting her, but found that it didn't help as much as it can be hard to find a counselor who actually deals w. SN families.

You can find Sarah’s page here: https://www.facebook.com/LifeWLou

Harry writes:

"Hi. I am divorced and have been for 10 years. My son is ASD and was diagnosed while our divorce was already in the process. I will tell you though I am sure it would have been a deal breaker anyway because his was and still is in denial. It has been a source of added conflict throughout our divorce which is a shame for our son. One of the biggest issues was, with the court giving her full medical authority, she stopped his private speech, occupational and psychological therapies years ago which has hindered his development."

Harry can be found at: https://www.facebook.com/profile.php?id=520048248

Jan shares

"Hi Jan here...Yes, i am Married ,been married 10 years but together for 20.I am NT, spouse NT but i think aspie, he has as many traits as kieboy.1nt child,19 years olld,1 autistic 13 year old. we handle life together, but don’t always agree. I say no shouting, hubby likes to shout, silly things like that.autism has put a huge strain on us because no one believed me when i said kie was autistic, even his dad, no one medical listened until he was 12.but,slowly it is making us all stronger, if we are honest. Diagnosis made a difference as i know i wasn’t going mad, kie knows what’s going on and his dad is slowly getting used to it. All we need now is to get him diagnosed LOL~~Jan."

You can find Jan here:

 https://www.facebook.com/AutismThroughTheEyesOfUsAll

Kelly writes:

Hi! I'm married and my husband and I are both NT. We have 2 children. Isabel is 4 and she has ASD and Nathaniel is 8 months so we are not sure about him yet. He is not showing any symptoms of ASD but you never know. I believe that our marriage has become stronger since Isabel was diagnosed. We are really a team now and we communicate so much more. Our kids are everything to us autism or not. Isabel was diagnosed when I was pregnant with my son and I was so worried that having a baby would upset her. She has actually started interacting with him and it's great to see. I hope this helps.

Christel writes:

"Not married, divorced my first husband, and my second one is deceased. That is many years ago, so I consider myself single now.

I have a ASD, and so does my son, (12) My daugther(19) is NT

How do you handle life together/apart......I Live on my own, with some help, my son lives in a group home, and has found his place in the world too. My daughter lives on her own.

My son comes home every other weekend and a few days extra for the holidays, never more then 4, which is the limit for him and me being in one place without much trouble. My daughter visits when she wants and can.

When my daughter was a teen I was undiagnosed, and it caused a lot of trouble. She was a very difficult ten, and we almost lost contact between us completely. Since I have my diagnosis now and know i have an ASD, it has gotten easy. She now knows why mom is different, does some things different than the rest of the world, and why I am the way I am. Knowing has helped her Understand and to give some things a place in her life. Between me and my son I have had some difficulties, but it’s easier for me to understand him, then it is for me to understand some things my NT Daughter does/did. A big support for all of us is my mother, a super-strong woman who does what she can despite having a physical handicap to keep things as smooth as possible. ( and yes, that is a big shout-out/thank you to her!)

I have recently started to blog about my life, and my views on asd on my website. i also post other stuff there, so it also a page that shows some of my interests. Not sure if i should connect a facebook page to my blog, i might soon, though."

If You would like to connect with Christel and get a perspective from an adult on the spectrum, you can find her here…

http://tmntfan.nl/

Sheila shares:

“Hi in answer to your question on relationships. I have been with my hubby for 20years and married for 14years since our son was diagnosed 3 years ago with ASD and co-morbid ADHD we have come to the conclusion that hubby is and undiagnosed aspie he and my son have a lot of similar traits and since researching Aspegers to try and understand our son a bit more we have said hubby is definitely on the spectrum. My hubby often struggles with the feel of certain textures for example he can't stand sand, he can't wear thongs as the post between his toes irritates him, when shopping for shoes they have to jump out at him and say buy me or he won't even try them on and when he does eventually find a pair if they don't feel right straight away he won't buy them. I used to struggle in the early years of our relationship when he used to find it difficult to show his emotions to me he very rarely hugs me or kisses me but I know he loves me in his own way. When his dad passed away 4 years ago in a tragic accident we had to travel by plane for 24 hrs to get back to the family not once did he show any real emotion it was only once he saw his dad in the funeral home did it really hit home about the fact his dad was no longer around even then he didn't cry and show a lot of emotion he just looked shell shocked. I have known my hubby since we were in high school and I remember him at school as being this quite guy who never really looked people in the eye and was always the one in the group who seemed quite shy (luckily he was taken under the wings of a great group of guys who have always accepted him for who he is). he is 40 next march and has only ever had 2 jobs in his adult life as he doesn't like change but when he does make a change it is on his terms and he does it big style. when we bought our 1st house he told me that he would never move from there as his mum and dad had lived in their house forever and he had only ever lived there that was until the day he calmly came downstairs to tell me he had applied for a job in Australia with the company who he was working for at the time, 4 mths later he was on a plane to try out his new job in Australia to see if he liked it and to see if they wanted him it started out as a 4 week trip which eventually dragged out to 7 weeks and then he only came home because he missed me and Tom and we had our home to sell by January of the following year we were in Australia and have been here 7years now and have just bought our own home (which I have been told he will never move from again). Over the years we have had some trying times were we have had our issues mainly because Rob doesn't tell me what is wrong and I end up screaming at him (which we all know gets you nowhere fast with someone on the spectrum) but to be honest I wouldn't change a thing and it helps me to know that the right girl is out there somewhere waiting for my handsome young man to be their special someone and I often say to people who I speak to on the spectrum that worry about relationships there is someone for everyone and that person will come along just be yourself and they will either love you or hate you if they love you hold onto them with all your heart if they hate you let them go they are not worth worrying about. Hope this inspires other people out there to give someone on the spectrum a chance.”

Jackson shares

“okay I'm rather ADD so I didn't pick up on exactly how you wanted me to answer questions. I can share with you what Autism has done to our marriage through 23 years. Right now what frustrates me most is that I'm the "interpreter". My husband seldom talks directly to Ian. He talks through me. This is partly my fault. I'm so afraid hubby will say something in the wrong way and he will melt down and I don't need that in my life...that I just jump in. This is tiring. This is old. I wish I could stop. I wish I could be in a place in my life that I could handle an occasional meltdown and not walk on eggshells. I know it has been hard for hubby to put up with my seeming obsession with this child/person. Now that he is technically a "man" (and that is a HARD word to use) hubby wants him to have a "normal" life. I'm still protective. I know my hubby sees eternity stretching out before him with this person always in our home. We are at the point where we are planning our retirement and our retirement includes a grown person in our home possibly forever. We yearn for an empty nest where we can run around the house naked and that's just not going to happen. Hubby keeps making plans and I keep saying "What about Ian?".

I know that a lot of your readers are struggling with younger austistic children, but I wanted to put this out there. They become autistic adults and they still need care. We are not saintly. We struggle and disagree about what's to be done.”

Jackson also opens up to me about SEX in an Autistic household”

“I was reminded this morning also of another challenge to marriage with an autistic "child". Sex. I swear we went years without it. Ian was in hospital quite a bit so we were not even physically in the same spot. We celebrated a wedding anniversary in the hospital. Later the code word for sex was "Is the boy asleep?" He has learned to knock before entering our room if the door is shut. He has NOT learned to wait for the "all clear" before opening the door. This of course leads to lots of embarrassment. Later he will ask "were you having sex?" It seems he asks this in front of other people a lot. His brothers get grossed out at the thought of 50 year old people having sex and the pastor just turns red!”

Heather writes:

“I’m sending this message in response to your questions for your blog. I am married. My spouse and I are both NT. We have three children. All boys... they are Caleb 10, Aden 5, and Logan 3. Aden is our only child with a diagnosis of ASD. Our life is one big roller coaster...lol. I am a stay at home mom and my husband works 12 hour days, 7 days a week. So finding "adult" time is hard then you add in 3 kids, one with autism. It can be very straining on our relationship. But we have learned to take each day and embrace it. Our son Aden has helped us open our eyes and see everything in a different perspective. I wouldn't want my family and my life to be any different.”

Nita shares:

I will say I believe autism has strengthened our marriage. We had a lot of issues before, especially backbiting. When we received Kylee's diagnosis that caused a lot of turmoil and practically no one in the family even talks to us on my husband's side. It is so sad. Before, I would have said it could've made our marriage wobbly but my husband has stood up and been amazing. Once he was on board, lol. Long story short, we do not let anyone's negative opinions color our situation and feelings. People have nothing better to do than ignore us and our daughter, go for it. My mother in law has practically ignored my child. She let her stay over New Year's of this year. Hasn't called to do anything with her. All year! That used to take it's toll before but now, neither of us care. When Kylee brings it up, we answer her truthfully and carry on.

Wendy shares:

I am happily divorced. My son's dad has no clue where my son is. The last time I talked to my sons dad the awful man told me that when my son turns 18 he would kick my sons a** and beat the autism out of him. To say the least if this man ever found out where my son is he is not allowed to go near my precious baby. Even though my son resides in a group home sometimes there is a strain. Misbehaviors  that I also have to deal with. Sometimes I do wish I did not have to do this alone but then I think what an awful man his dad is and then I think how lucky we are not to have him in our lives. My son does miss having a dad at times. Btw I call his dad a sperm donor. My son is now 15 when he was 1 his dad went to jail and when he got out only seen him a few times. So for the last 14 years I have been mom and dad.

So there you have it.....Different people, different perspectives on Autism and Marriage. Months ago, I read a blog by Autism Daddy where he listed ways he and his wife keep their marriage strong. I LOVED it. You can check it out by clicking here: Autism Daddy

For info on Autism and Marriage, check out the link below. I turned to Google , and found a site with many helpful links:

More info CLICK HERE

We Will Not Be Silent!!!

It's up!!!!! Please head over to this link where you can purchase a "WE WILL NOT BE SILENT" Autism Awareness Tee! A portion of every purchase goes to Liam to help him reach his goal of an ipad and other therapy items ♥ Please share this with as many people as you can, and help Liam get the word out!

We Will Not Be Silent

here is what it looks like

Get yours today and show your support for Autism Awareness <3

Parts of the Brain Affected by Autism

I found this picture on an Autism web site, and I thought it was interesting, and so I  wanted to share.