There's a trend on social media attacking parents like myself, whom write about our lives with Autism. I could point out page names and blogs, but why give these people more attention than they deserve? Instead, I'm going to share my feelings about it.
First of all, people need to stop accusing us of being disrespectful. They claim that we have our blogs and pages to get attention for being an autism parent, and in doing so, are disrespecting our children. How bogus is that?? (Trust me, I loathe attention. I'm happy hiding out from small talk and people.) I myself, as with many other autism parents I know, started our pages and blogs to tell OUR story. (We aren't here to tell your story. That's your prerogative.) We are reaching out and sharing slices of our lives, to connect with other parents that are walking a similar path. To help ourselves, and to help others.
Secondly, they claim we are exploiting our children. (Another reason they accuse us of being disrespectful.) Okay, now maybe some people do that, but lumping all of us page owners and writers into that category is, well frankly, it's bullshit! My son is old enough now, that I ask his permission to share certain things. When I started, he wasn't able to make that decision. So his father and I would talk about what it was I wanted to share, and together, decide how to do it respectfully. I have never shared inappropriate images of my son. (Who would with all the pervs out there?) When talking about his severe cycles, I divulge basic information, but I never go in depth with things my son says to me in confidence. We don't tell people where we live. I also don't accept strangers on my personal Facebook.
Thirdly, they claim that we share too much. That by telling people our story, we're in fact hurting our children. If my son has a rough day, he has a rough day. We are teaching him to own it. Shit happens, to ALL of us! If I choose to joke about it on social media, and let others know they aren't alone in this struggle, how is that hurting my child? He isn't the brunt of my joke. I am sharing to vent. Sharing to make light of a crappy day. That's how we roll in our real lives too.
We can't sit here, behind our keyboards and act like life is all sunshine and rainbows. That's bullshit, and we all know it. As writers, we are sharing our story to reach out to all of you. These "sanctimommies" need to step off, and worry more about how they are raising their children, instead of how we are doing it. Hell, most of the autism pages I follow are much like mine. They share the good, the bad, sensory fun, inspirational posts, jokes, and more. They are real. Isn't that what we want? Why would we want to read fake crap? Not one of us is a "perfect" parent! I could keep going on about how they're judging us, but I have a life, and so I will stop here.
One last thought.... We're all muddling through this gig together. Instead of belittling one another, let's raise each other up! Besides, falling off a high horse would be pretty painful, and I for one, wouldn't want to be the wanker that falls off!
Showing posts with label blogging. Show all posts
Showing posts with label blogging. Show all posts
Tuesday, June 28, 2016
Monday, November 18, 2013
This is Autism....
For those that may not know:
Last Monday, Autism Speaks told the world that autism is:
. . . living in despair
. . . fear of the future
. . .exhausted, broken parents
. . . lost, helpless, burdensome children
. . . a national emergency

WHAT????
That isn't
what Autism
is to us?
THIS is Autism,
OUR Autism:
This is Liam. He is autistic. He isn't a burden. He isn't a tragedy. In fact, he is the OPPOSITE! Liam is a miracle! He is the baby I was told I would never have, and yet here he is.
He is happy. He makes us all happy. He is loving. He is smart. He is kind. He is caring. I could list things all day of what he IS, and NONE of them are what Autism Speaks says he is.
To know my son is to love him. I am guessing the folks at Autism Speaks don't really KNOW autistic individuals because if they did, they wouldn't have said such atrocities about my son and his peers.
I won't sit here, and act like our life is all peaches and cream, because it isn't. Just like all other people living their lives, we too have rough days. Liam tries his hardest to overcome any and all obstacles that being autistic presents him. He's NOT lost, burdensome, or helpless. He's a fighter. Look out world, because he will take you by storm!
We don't live in "despair." We live in HAPPINESS! Our lives are greater BECAUSE of Liam. He is our life and we wouldn't have it any other way.
So, Autism Speaks, you lost a family that supported you. A family that thought you supported us. Do you even really care about our kids? Or do you care more about the money they raise for you in their names?
Last Monday, Autism Speaks told the world that autism is:
. . . living in despair
. . . fear of the future
. . .exhausted, broken parents
. . . lost, helpless, burdensome children
. . . a national emergency

WHAT????
That isn't
what Autism
is to us?
THIS is Autism,
OUR Autism:
This is Liam. He is autistic. He isn't a burden. He isn't a tragedy. In fact, he is the OPPOSITE! Liam is a miracle! He is the baby I was told I would never have, and yet here he is.
He is happy. He makes us all happy. He is loving. He is smart. He is kind. He is caring. I could list things all day of what he IS, and NONE of them are what Autism Speaks says he is.
To know my son is to love him. I am guessing the folks at Autism Speaks don't really KNOW autistic individuals because if they did, they wouldn't have said such atrocities about my son and his peers.
I won't sit here, and act like our life is all peaches and cream, because it isn't. Just like all other people living their lives, we too have rough days. Liam tries his hardest to overcome any and all obstacles that being autistic presents him. He's NOT lost, burdensome, or helpless. He's a fighter. Look out world, because he will take you by storm!
We don't live in "despair." We live in HAPPINESS! Our lives are greater BECAUSE of Liam. He is our life and we wouldn't have it any other way.
So, Autism Speaks, you lost a family that supported you. A family that thought you supported us. Do you even really care about our kids? Or do you care more about the money they raise for you in their names?
Tuesday, September 17, 2013
Lazy or numb...
I have barely blogged in months. I can't quite decide if it's because I'm lazy or just numb. I say lazy because I am always so damn tired. Keeping up with Liam, life, PAUSE, and the Legion has me mentally exhausted. Having a chronic illness sucks the life out you in so many ways. Too many to take the time to list. I have had to prioritize our life so much more in the past months. This means, that my blog has suffered the most because well, not that many people read it anyway. :)
I started this blog as a way for me to vent. Apparently I was annoying people a few years ago, when I was using my facebook page (personal one) to talk about Autism. Now I could care less, but that is how this blog was born. I vent much less now. Sometimes I vent on ALFL or on RHoA if I am using my more colorful language. But the deep, heartfelt vents are few and far between lately. I think I am numb.
"My heart is broke
But I have some glue
Help me inhale
And mend it with you
We'll float around
And hang out on clouds
Then we'll come down
And have a hangover "
I mean, of course I have a heart. Wouldn't be alive if I didn't. But I have been closing it off from the world a lot in the last six months, maybe even longer than that. I haven't been letting myself feel. I have become hard. I have become numb. Not because of anyone or any one thing, in particular. Because I am tired. I am fed up. I am afraid that if I let myself feel, I will lose it. I will lock myself in a room and I will ugly cry. Probably for days. Let's face it: "Ain't Nobody Got Time For Dat!"
"Sit in the sun
Fall asleep
Wish away
soul is cheap
Lesson learned
Wish me luck
Soothe the burn
Wake me up"
I don't want to feel that pain. I don't want to cry. I want to keep it inside and ignore it. It has nothing to do with Liam. Or Autism. It has everything to do with myself. My constant pain and fatigue. Being broke and knowing there is not a damn thing I myself, can do about it. It's about realizing that yep, our life is hard as hell sometimes, but who am I to whine. There are people out there who have it a hell of a lot worse. We have a home. We have a family. We have love. There are people who have NONE of that. So I chose to suck it up, and keep on, keeping on.
"I'm not like them
But I can pretend
The sun is gone,
But I have a light
the day is done,
I'm having fun
I think I'm dumb
Or Maybe just happy"
I sometimes feel I shouldn't refer to myself as a "blogger," let alone a "writer," because I barely do either. But dammit, I like the sound of that so much more than "disabled," "housewife," "maid," and so on. No, I didn't go to college. I graduated high school, got married, made a ton of mistakes, taught myself how to tattoo and then after YEARS of hard work I became a tattoo artist. I can't even do that any more because I can't sit in one place that long. I can't bend hardly at all. My hands go numb after holding my machine for longer than 10 minutes. I can't draw anymore either and I LOVED to paint and draw. So, being on my laptop and writing or creating digital art is the only creativity I am left with any more. God, would you believe I am 34 and not 74!!! (I feel the latter though.)
So for all this and more, I am now going to refer to myself as "A Lazy, Numb, Sometimes Blogger..." Because at least that way I am being truthful ;)
"Think I'm just happy ,
Think I'm just happy ,
Think I'm just happy ."
<3 <3 <3 <3
Song Lyrics belong to Nirvana, written by Kurt Cobain
I started this blog as a way for me to vent. Apparently I was annoying people a few years ago, when I was using my facebook page (personal one) to talk about Autism. Now I could care less, but that is how this blog was born. I vent much less now. Sometimes I vent on ALFL or on RHoA if I am using my more colorful language. But the deep, heartfelt vents are few and far between lately. I think I am numb.
"My heart is broke
But I have some glue
Help me inhale
And mend it with you
We'll float around
And hang out on clouds
Then we'll come down
And have a hangover "
I mean, of course I have a heart. Wouldn't be alive if I didn't. But I have been closing it off from the world a lot in the last six months, maybe even longer than that. I haven't been letting myself feel. I have become hard. I have become numb. Not because of anyone or any one thing, in particular. Because I am tired. I am fed up. I am afraid that if I let myself feel, I will lose it. I will lock myself in a room and I will ugly cry. Probably for days. Let's face it: "Ain't Nobody Got Time For Dat!"
"Sit in the sun
Fall asleep
Wish away
soul is cheap
Lesson learned
Wish me luck
Soothe the burn
Wake me up"
I don't want to feel that pain. I don't want to cry. I want to keep it inside and ignore it. It has nothing to do with Liam. Or Autism. It has everything to do with myself. My constant pain and fatigue. Being broke and knowing there is not a damn thing I myself, can do about it. It's about realizing that yep, our life is hard as hell sometimes, but who am I to whine. There are people out there who have it a hell of a lot worse. We have a home. We have a family. We have love. There are people who have NONE of that. So I chose to suck it up, and keep on, keeping on.
"I'm not like them
But I can pretend
The sun is gone,
But I have a light
the day is done,
I'm having fun
I think I'm dumb
Or Maybe just happy"
I sometimes feel I shouldn't refer to myself as a "blogger," let alone a "writer," because I barely do either. But dammit, I like the sound of that so much more than "disabled," "housewife," "maid," and so on. No, I didn't go to college. I graduated high school, got married, made a ton of mistakes, taught myself how to tattoo and then after YEARS of hard work I became a tattoo artist. I can't even do that any more because I can't sit in one place that long. I can't bend hardly at all. My hands go numb after holding my machine for longer than 10 minutes. I can't draw anymore either and I LOVED to paint and draw. So, being on my laptop and writing or creating digital art is the only creativity I am left with any more. God, would you believe I am 34 and not 74!!! (I feel the latter though.)
So for all this and more, I am now going to refer to myself as "A Lazy, Numb, Sometimes Blogger..." Because at least that way I am being truthful ;)
"Think I'm just happy ,
Think I'm just happy ,
Think I'm just happy ."
<3 <3 <3 <3
Song Lyrics belong to Nirvana, written by Kurt Cobain
Friday, July 26, 2013
Woot Woot! Someone likes me ;)
Stay at Home Crazy has donned me with the Liebster Award. How cool is that??? I feel so honored. She must really like me because last year she gave me this award too. (If you want to check that post out and see if anything has changed in a year, CLICK HERE.) So now, in return, I have to follow through on what comes with the award.
And here is what the winners must do:
- Thank the Liebster Award presenter(s) on your blog.
- Link back to the blogger who presented it to you
- Copy and paste the award on your blog.
- Present the award to 5 or 11 blogs that deserve to be noticed.
- Let them know they've been presented with the Liebster Award.
- Answer 11 questions posed by the presenter.
- Eat some dark chocolate. It has anti-oxidants in it. It will cure what ails you. Unless you are allergic to chocolate. Then skip 7.
So here goes........
1) A huge thank you and much love to Stay at Home Crazy for this award. Muah!!!! Thanks to this award, I have a reason to blog..... Well I guess I have many reasons to blog, but lately putting my thoughts together is just not happening. I blame my gabapentin and FMS for this horrible brain fog!
2) ↑ I did that above, click her AUSOME blog name ↑
3) Yup, did that too. (see top of blog)
4) And now for my list of blogs: Wow, I have met so many wonderful ppl in just the last year of this.... So this list may be a bit long!
- Four Sea Stars
- Homestyle Mama with a Side of Autism
- Deciphering Morgan
- Spouse, Kids and Special Needs Aren't Things Issued in a Seabag
- To Autism With Love
- Captain Jacktastic
- Autism Family Circus
- Autism Art Project
- Fasten Her Seat Belt
5) I guess I will do that when I finish this post!
6) Here goes, bear with me!
- What, if anything, is completely off limits as far as blog topics for you? NOTHING! I post what comes to mind, and about our life. I do leave my inlaws out of posts out of respect for their privacy. Other than that, it's fair game here!
- What is your favorite sound? That's easy! The sound of Liam ASLEEP ;) Or rain on a tin roof, I love that sound too!
- If you could go back and talk to your 15 year old self, what one piece of information/advice would you share? Don't talk to your parents like that! You will be a parent one day, and you will realize they aren't being "mean" they are loving you and doing what is best for you. You will HATE it when your child speaks to you like that!
- How did you end up doing what you do today? (If you're a SAHM, what made you choose that vs. going back to work? If you work a paying job, how did you end up in the field you are in?) At first it was by choice. I was a SAHM while pita worked. Then he became injured and now I was a SAHM and a nurse. Then the older Liam got, and the more his behaviors increased there was no choice but for me to stay home. Especially once he wasn't able to attend public school. I then took on the role of his teacher as well. Now with my health problems, I really can't work. So I am a SAHM, a teacher and a nurse. My plate is FULL!
- What is your guilty pleasure? A Nap! I love to take naps, and there are days I HAVE to nap bc the chronic fatigue part of my illness makes me unable to stay awake. I always feel guilty when I need to take a nap. Like I may miss something cute that Liam does, or I'm not giving him enough attention. (I know, cray cray!)
- What's your favorite candy? Anything chocolate! I LOVE chocolate!
- What prompted you to start your blog? Our life. When the Dr. said Liam had autism, pita and I were blown away. It just wasn't on our radar. Then certain people started complaining I was using facebook too much to vent, ( I unfriended those a holes) so I started my blog so I could speak my mind. It actually was a great release for me at first. Free therapy ;)
- Do you have a favorite food? If so, what? Hawaiian Pizza, Pizza Hut stuffed crust supreme and chinese food ;)
- If you had to pick 1 thing to change about yourself, what would it be? My weight. Due to my illnesses I have put on a lot of weight. They are working to get my thyroid under control, but even then I am so tired and weak I don't leave my chair much unless it's housework or something Liam needs.
- What physical attribute do you like most about yourself? Seriously??? I have to answer this??? I guess my smile. I once had someone tell me that when I smiled, my whole face lit up..... So I guess if I had to chose, that is my choice :)
- Do you still live where you grew up? If not, how far away are you from your hometown? No, well kinda. I live about 20 minutes away from the first town we lived in. In the 5th grade we then moved to a neighboring town (where my parents still live) so I live about 35 minutes from there :) I would love to move back to Florida though. Living only 20-30 minutes from Clearwater beach was so nice! I miss it very badly!
That is it for me. And so I pass on the torch :)
♥ ♥ ♥ ♥
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