Showing posts with label Being a momma. Show all posts
Showing posts with label Being a momma. Show all posts

Friday, January 16, 2015

A Mom's Insight on Pediatric Bipolar Disorder



My son is autistic. Autism is on the forefront of many media outlets nowadays, so you know what that is. He also suffers from a mental illness. I'm not talking about autism here. I'm talking about pediatric bipolar disorder.

I'm sure you've heard of it. You've probably even heard it joked about. Did you know it affects kids too? Well it does. It steals away moments of their childhood and rips out their parents hearts.





Children who suffer from BPD differ from that of most adults afflicted with it, because they cycle so rapidly. (Cycling is when they switch from mania to depression and so on) *refer to chart* These cycles can occur numerous times in one day.

Have you ever seen the meme that said, "How much do you charge for a ride on your mood swings?" I used to think that was funny. Now I find it offensive. Maybe because I watch my child swing between moods so frequently some days.

Here's the break down of mania vs depression:

Symptoms of mania include:
  • euphoria (elevated mood)—silliness or elation that is inappropriate and impairing
  • grandiosity
  • flight of ideas or racing thoughts
  • more talkative than usual or pressure to keep talking
  • irritability or hostility when demands are not met
  • excessive distractibility
  • decreased need for sleep without daytime fatigue
  • excessive involvement in pleasurable but risky activities (daredevil acts, hypersexuality)
  • poor judgment
  • hallucinations and psychosis

Symptoms of depression include:
  •  lack of joy and pleasure in life
  • withdrawal from activities formerly enjoyed 
  • agitation and irritability
  • pervasive sadness and/or crying spells
  • sleeping too much or inability to sleep
  • drop in grades or inability to concentrate
  • thoughts of death and suicide
  • fatigue or loss of energy
  • feelings of worthlessness
  • significant weight loss, weight gain or change in appetite

Being a woman, we know how mood swings can be. We live with PMS every month. But this is different. More extreme. A person/child with BPD will go from laughing, and incessantly talking your ear off, to angry, crying, screaming, and so on. They can become violent too. Take 3 or more of those symptoms above, and they happen all at one time. Then the child will cycle to other end. (refer back to arrow chart)

(Now add that to autism. It's quite explosive some times)

People have asked me if I was ever afraid OF my child. No. NEVER. I'm afraid FOR my child. Stereotypes. Negativity towards mental illness. Misinformation of these illnesses especially in children doesn't help either. 

My hope is that by reaching out, exposing myself, sharing our life, I can help spread the word. I hope that even ONE person reads this, and says, "I'm not ashamed of my mental illness!" So they can help by spreading the word. 

I want to help make that change for mental illness awareness. Pediatric mental illness awareness. 

My son is almost nine. We are starting to have more rough days than good. We're working on finding medications that help his BPD and don't hinder him in general. It's not easy. It's rough on him. Rough on us. We've been faced twice with the possibility of hospitalizing him. (once when he was 5 and last spring, he was 7) The nearest psychiatric hospital that can take children is FOUR hours away! So not only do we need more people speaking out about mental illness in children, we need more service providers in all areas. Parents facing the decision of having to admit their children to psychiatric hospital, shouldn't be faced with the worry of how far away it is. (That was a HUGE concern for us. My son has major anxiety issues and can't be away from me for any amount of time.)


I try to talk about BPD every chance I get. I try to reach out and let people know what it is. How it affects my son, myself and our family.  To protect him, and do his story justice, I ALWAYS ask what I can post, and what he wants to keep secret. He almost ALWAYS lets me post his "story" exactly how it happens. He's quite the advocate for a child.

But I find myself holding back. I ask myself why all the time. I'm a very upfront and blunt person. I hold back though because there is such a negative stereotype surrounding mental illness, and I'm afraid people will peg my son as something he's not. After all, first and foremost he's a little boy. A little boy with a lot on his plate, but a little boy none the less.

We've already dealt with bullies. Sometimes on a daily basis because of where we live. We had to pull him from school because they didn't have the patience to be kind to him. We've been in and out of therapies, social skills groups (autism) and so on. Through it all, he keeps on. He wears a smile and he is such a fun loving kid. He has taught me so much! On days where I can't take BPD any more, and I start to cry, I think of how it must feel for him. He has to fight his own mind. I don't. I just have to be there for him. I just have to be his mom.

 Whether or not you know someone afflicted with bipolar, try to educate yourself on it a bit. Teach your children to be kind and accepting of the kids that don't seem quite like them. Teach your children to speak kindly to everyone, no matter how different they seem. 



Also, if you think you or someone you love may be suffering with bipolar disorder, PLEASE speak to your doctor. Do not be afraid. Do not be ashamed. None of us are perfect. We all have a battle to fight, yours is just different than mine.



Sunday, January 5, 2014

Rock and a hard place....

  Trigger warning: whiny mother who feels defeated, deflated, and discouraged.


Do you ever feel like no matter what you do, it's going to back fire in your face? Like you're caught between a rock and a hard place??? 





  As a special needs parent it's our job to prepare our kiddos for the world (to prepare the world for our kiddos) and to combat any issues that may arise in this process. Many of our autie kiddos are VERY dependent on a schedule, on their routine, and anything less really creates an issue for them. Which inadvertently creates one for us.

  So we all know that when schedules/routines need to be changed, it's our job to prep our kids. (yes, sometimes we can't, that is life, and we have become accustomed to dealing with that fall out.) But the times we do know in advance, we prepare.

  Lately, preparing Liam for any routine changes seems to cause MORE issues for him. Thus creating more for me. For some reason, when I tell him what is changing, he spends almost every waking moment ruminating on these changes. For instance, tomorrow I have an appointment in the am. When we get home his MT will come for 2 hours. Then the neighbor kids are getting off the bus here. After that an OT will be here to evaluate him for services from his cyber school.

  While this may not seem like much to us, to him this is huge. I told him this morning what was going to take place tomorrow. I knew a busy day, that is out of our "norm," warranted some preparations. Instead, all it has done is given me a head ache and him more things to worry about.

  His mind is thinking of every damn thing that could go wrong. Even things that won't go wrong. It's creating scenarios about tomorrow that will never happen, but in his mind, they will. I feel awful saying it's annoying me. I know how bad that sounds. I also know how badly it's affecting him. But I did what I have always done, which is prepare him for the changes in the day ahead. I am thinking that I made the wrong decision....

  So I am left with, next time, do I tell him and watch him ruminate all day? Or do I NOT tell him, and then deal with the fall out? See what I mean? Rock and a hard place.... Is there even a right answer???



I am by no means a perfect mom. I know this. I just want to do what's best for my son. Sometimes I'm not just sure what that is.....  

Thursday, November 15, 2012

Freedom, oh sweet freedom!!!!!

First, let me start by saying, I am sorry I have neglected my blog. I never realized how much my ALFL page would take off, and I use that for most of my venting/sharing..... Also, I seem to be in a fog most of the time, so writing anything lengthy just doesn't work for me.... (damn FMS!!!!)
    Today I write because sweet freedom is just hours away!!! That's right! Tonite this momma is hitting the town with some friends!!!! It's our annual movie date. Yes, I said annual. (I know, I don't get out enough!) We are headed to the movies tonite to watch the end of the Twilight saga. (Go ahead Twilight haters, roll your eyes) You see, I read all the books, and LOVED them. After I watched the first movie, my girlfriends and I started a tradition of leaving the kids with the men, and heading to the midnight showings. I know many people do not like Twilight (just "cray cray" to me!) I however love them, and I don't care. Stephanie Meyer jumped into my adolescent mind and wrote the greatest love story a macabre girl could ever want. Vampires, werewolves, and hotties, OH MY! In all seriousness, the only way it could be better is to put some witches in there! (Also obsessed with Salem witch history)
    There's more to it than enjoying the movies for me. It's my one time a year that I get out WITHOUT LJ. I put on makeup, wear something other than jeans and a tee shirt, and I even do my hair! (Gosh, it's like a luxury!) To me, this is the one time a year, where I get to be Courtney. Not momma, not the wife, just ME!!!! Now, I would like to tell you I turn off my cell phone, and forget for the evening that I am a momma, but I don't. I can't. I set it to vibrate and hold it all nite. I know he is with his dad, but he is super attached to momma (yes, some would say his UC is still attached to me) and I can't go out and just forget him..... (I even sneak out before the movie starts, and check in. Yes, I know, let it go, RELAX. That's not my style!)
    So because of the Dark Knight shooting, tonite the movie will start at 10. We have to be there at 8 to get our seats, and then we will sit and visit while listening to the DJ. Talking won't be easy because the music is so loud. I don't care. I will be surrounded by my ladies, and I am away from home. It's a win win in my book.
     So for those of you who don't like the Twilight Saga, you can hate all you want. As for me, it has given me a chance to get out, and be me. In some weird way, I am kind of sad, this is the end......Now we need to find another excuse to get out once a year, lol!
                                                                    <3<3<3<3